When he was born, his father would hold him and imagine the bright life waiting ahead of him. Just like every other father, he too would dream of his little son growing up as a happy young man.
But fate had written a rather different story for Tarvinder Singh’s son- Jaskirat Singh. Jaskirat’s parents did not know that their son would be born with a rare genetic disorder that his life will depend on a medicine dose, to be injected every month. His parents’ dreams turned into agony an heartbreak when they found out that Jaskirat is suffering from a rare genetic disorder. For Tarvinder Singh, the joyous moments of his growing son have been overshadowed by the sorrow of ensuring administration of the monthly dose of an expensive drug to keep him alive.
Jaskirat Singh is suffering from life threatening disease primary immunodeficiency disorder which is an incurable disease. The 12 year old boy is being regularly taken to the PGI, Chandigarh for treatment at the Paediatric Immunodeficiency Clinic since October 2009, which is the only place to add a few more months to his life. In medical terms, the disease is the result of very low levels of serum IgG and mandates intravenous immunoglobin injection every month to keep the boy alive.
The family is poor and the drug costs above Rs. 20,000 every 21 days and is only administered in PGI Chandigarh. The massive expenses have pushed the family to the edge as they have sold most of their jewellery to meet the financial needs of their son’s treatment.
His father said that he cannot leave his son and it is his duty to save his life being a father but the medication cost is making it impossible for the family to continue. “Some social organizations and individuals are helping him meet the financial demands but for how many years will they keep doing that,” he expressed. The family says that the doctor has told them that if the boy skips even one injection, it will have affect on his future survival. The poor family hopes that the state government could come to their rescue and ensure that their son survives.